After reading the article in the link below it inspired me to write a long overdue post. (I'll write another less infomercial post later!). Maybe one day they'll have a cure for us rather than the Russian roulette we play with our treatments which can cause significant and at times deadly consequence!! You know those commercials where they list the horrible side effects and healthy, normal, people scratch their heads and wonder what would make a person willing to risk those? Well oftentimes it's take the risk or be non-function in vital areas - like breathing.
That. That is the reason people have to risk such side effects. We take the chance of developing cancer, clots, reactions, and deadly infections in order to simply breathe, walk, chew, swallow, hold our heads upright or simply hold our eyes open.
So yeah. We are risk takers. We're fighters! Maybe we're not able to jump from planes and other thrill seeking activities risk takers partake in. But every morning, noon and night we open those huge pill sorter boxes and take another fist full of medicines we are taking risks - but we're also clutching onto hope!
I read the article.....it's a little hard for me to understand it all....very interesting about having the theumus removed???? grny
ReplyDeleteOnce the disease, and the cause, is understood in there lies hope that a cure can be developed. Also, with this new research, many who are undiagnosed may be able to finally have that black and white diagnosis. A great many doctors will not proceed with treatment until blood work shows a positive result. The problem with this, however, is that many of us have MG yet are sero-negative as the blood tests are not always positive. One of the medicines used in treating MG - the only conditions it treats is exposure to nerve gas and MG. So, maybe since it's being researched and other indicators are found, maybe a cure will come in our lifetime! :^)
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